Preventing Behaviour of Concern in Children with Autism

Challenging behaviours are a common and often complex issue faced by families, educators, and caregivers of autistic children.

These behaviours, often referred to as behaviours of concern, can range from aggression and self-harm to meltdowns, and understanding a child's behaviours is crucial for effective intervention.

Family members, in particular, can feel overwhelmed by these behaviours, often struggling to differentiate between what to accommodate as part of the child’s autism and what requires intervention to ensure safety and well-being.

The differences between challenging behaviours in neurotypical children and autistic children often lie in the underlying causes, expression, and context of the behaviours. Here’s a breakdown:

1. Underlying Causes

For neurotypical children, challenging behaviours are often a response to unmet needs, such as hunger or tiredness, and can be linked to developmental milestones like testing boundaries. External factors, such as peer influence or frustration with imposed limits, may also play a significant role in triggering these behaviours.

In contrast, for autistic children, behaviours of concern often stem from entirely different causes. Sensory sensitivities, such as discomfort with loud noises or bright lights, frequently contribute to these challenges.

Communication difficulties or an inability to express needs can also lead to frustration and behavioural outbursts. Additionally, autistic children may struggle with change, unpredictability, or transitions, which can provoke distress. An intense focus on specific interests or routines can also give rise to behaviours when those interests are disrupted or routines are altered.

2. Expression of behaviour

In neurotypical children, challenging behaviours are usually expressed in ways that align with their developmental stage. For example, toddlers may throw tantrums, while older children might exhibit defiance. These behaviours often diminish when their needs are met or when consistent boundaries are enforced.

For autistic children, however, the expression of behaviours can be quite different. They may engage in repetitive or self-stimulatory actions, such as hand-flapping or rocking, as part of their self-regulation or challenges. Their behaviours can also appear more intense or atypical, such as meltdowns or self injurious behaviour, due to unique sensory or emotional needs. If the underlying sensory, communication, or emotional triggers are not addressed, these behaviours may persist or even escalate over time.

3. Triggers

For neurotypical children, frustration often arises from unmet wants or challenges with boundaries. Peer conflicts or a desire to seek attention can also trigger behaviours, as can developmentally typical power struggles or curiosity about their environment.

In autistic children, triggers are often tied to sensory experiences, such as sensory overload or deprivation. Disruptions to established routines or unexpected changes can be particularly challenging. Difficulty understanding social cues or expectations may also contribute to behavioural responses, as can frustration stemming from communication barriers.

4. Frequency and Duration

In neurotypical children, challenging behaviours are often situational, arising in response to specific events or triggers, and they tend to resolve as children develop coping skills and self-regulation. These behaviours typically follow a predictable developmental trajectory, diminishing as children mature.

For autistic children, however, behaviours may occur more frequently or persist for longer periods if the underlying causes are not effectively addressed. These behaviours can continue across developmental stages, particularly when they are linked to core autistic traits, such as sensory sensitivities or difficulties with communication.

5. Social Awareness

Neurotypical children are often aware of how their behaviour affects those around them and may intentionally act in ways that seek reactions from others. With guidance, they tend to adapt their behaviour when taught social rules or when faced with clear consequences.

In contrast, autistic children may have limited awareness of how their behaviour impacts others, primarily due to difficulties in understanding social cues. Their behaviours are often not intentionally disruptive but rather a response to internal needs or environmental factors that they may struggle to process.

Unlike similar challenging behaviour in neurotypical children, the root causes and triggers for autistic children are deeply intertwined with the way autism affects communication, sensory processing, and understanding of the world. For example

Self Injurious behaviours (SIBs): Behaviours such as head-banging or biting may begin as sensory responses but escalate to a level where they pose a risk to the child’s health and obvious physical discomfort.

Aggression: Difficulty with communication may lead to frustration that manifests as hitting or throwing objects, endangering others.

Understanding the underlying reasons for challenging behaviour is critical to developing effective strategies for preventing problem behaviour.

Distinguishing Between Symptoms of Autism and Behaviours of Concern

One of the most challenging aspects of supporting children with autism spectrum disorders is determining whether a particular behaviour is a symptom of autism, a behaviour of concern, or a combination of both.

It is also important to consider whether behaviours are a response to physical pain or discomfort, which can be challenging for autistic children to communicate.

This distinction is crucial because it informs how the behaviour should be prevented.

Further complicating the issue is the need to differentiate between a behaviour that is a natural symptom of autism and one that represents a concerning escalation or poses harm to the child or others. This nuanced understanding requires an empathetic, informed approach that takes into account the child’s unique challenges and needs.

For example, repetitive behaviours are common in Autism spectrum disorder and are not always a cause for concern, as they can provide comfort, regulate emotions, or serve as a way to process sensory input. However, they may become a behaviour of concern based on four key factors:

1. Frequency

  • The behaviour happens so often that it disrupts daily activities, learning, or relationships.

  • Example: Constantly spinning objects to the point where it prevents engagement with others or other tasks.

2. Duration

  • The behaviour lasts for extended periods and makes it difficult for the individual to transition to other activities.

  • Example: Spending hours on a single repetitive action, leaving little time for other necessary activities like eating or sleeping.

3. Intensity

  • The behaviour is physically intense, causing harm or distress to the individual or others.

  • Example: Head banging, severe biting, or other self-injurious actions done with significant force.

4. Impairment

  • The behaviour limits the individual's ability to participate in typical daily routines, learn new skills, or engage socially.

  • Example: Flapping hands in a way that distracts from learning or creates significant barriers in social interactions.

Guidance for Parents, Teachers and Care Givers

For parents, teachers, and caregivers, dealing with challenging behaviours can be emotionally taxing. Prevention requires patience, consistency and collaboration.

Without a shared understanding and strategy among all stakeholders, efforts to support the child can become fragmented, potentially exacerbating the behaviour problems.

The consequences of unmanaged behaviours of concern can ripple through families, leading to stress, burnout, and strained relationships. This makes it all the more vital to equip those supporting autistic children with the right tools and strategies to prevent these challenges effectively and in a positive way.

In this article, we’ll explore why behaviours of concern are prevalent in individuals with autism spectrum disorder, how to distinguish these behaviours from autism’s natural characteristics, and why a unified approach is essential.

Additionally, we’ll highlight how the Behaviour Help App can be a valuable resource in navigating these challenges, offering practical solutions for those involved in the child’s care and development.

The Importance of a Unified Approach to behaviour Prevention in Children with autism spectrum disorder

For children with autism, consistency is not just helpful—it’s essential. Autistic individuals often thrive on predictability and structure, which makes it crucial for everyone involved in their care to follow a unified approach when managing behaviours of concern.

A fragmented or inconsistent response can confuse the child, escalate behaviours, and undermine efforts to create a supportive environment.

The Behaviour Help App provides an innovative way to bring consistency to behaviour prevention by allowing parents, caregivers, and teachers to work together seamlessly.

With its data-sharing and tracking capabilities, the app ensures that everyone is on the same page, contributing to the creation of positive behaviour support plans within the well-established Assess, Manage, Prevent framework.

The Role of Quality Assessment

At the core of effective behaviour prevention is the ability to assess behaviours accurately and in detail to address the underlying causes When a behaviour of concern occurs, understanding the context is critical. The app allows stakeholders to record essential information about the child's behaviours in real time, such as:

  • Environmental factors: What was happening around the child? Was the setting noisy, chaotic, or overwhelming?

  • Triggers: What preceded the behaviour? Was there a sudden change in routine, a sensory overload, or a misunderstood communication?

  • Consequences: How was the behaviour managed, and what was the outcome? What behaviour strategies were implemented if any?

This systematic data collection paints a clear picture of the child’s experiences and challenges, making it easier to identify patterns, triggers, and the effectiveness of interventions.

Unified Implementation of Preventative Strategies

Once preventative measures and behaviour strategies are created, their success relies heavily on consistent implementation across all environments—home, school, and community.

The Behaviour Help App ensures that everyone involved has access to the same behaviour plans and can follow them consistently. This is particularly important for autistic children, who often rely on routine and predictability to feel secure.

Why Is Consistency So Critical for Autistic Children?

Children with spectrum disorders process the world in unique ways, often relying on familiar patterns and responses to navigate their environment. When different caregivers approach the child inconsistently, it can:

  • Create confusion and anxiety, as the child may not know what to expect.

  • Reinforce the behaviour of concern, if one stakeholder inadvertently rewards it while another discourages it.

  • Undermine the effectiveness of preventative strategies, as the child may experience mixed signals.

By ensuring that everyone is aligned in their approach, the app helps create a stable, predictable environment that supports the child’s development and well-being. This unified method not only reduces behaviours of concern but also fosters trust and a sense of security for the child with spectrum disorders.

A consistent, collaborative approach is more than just effective—it’s transformative for the child and those who care for them. The Behaviour Help App empowers all stakeholders to contribute meaningfully to a shared goal: helping the child thrive.

The Behaviour Help App is a web-based tool available on a all devices so all stakeholders in an individual's care can access the information in a secure and collaborative way:

The app is available on all devices that are connected to the internet

Quick Step Guide to Using the behaviour Help App to Prevent Challenging behaviours in Children with Autism

The Assess => Manage => Prevent (A-M-P) strategy of the Behaviour Help App is designed to guide teams through a comprehensive and collaborative process for addressing behaviours of concern in autistic children. Let’s break it down into three simple steps:

Assess: Understanding the Root Causes

The Assess stage conducts a Functional Analysis to uncover the purpose—or "function"—behind a behaviour. Functional analysis is a structured method of observing, documenting, and analysing behaviours of concern to identify triggers, environmental factors, and potential motivations.

With the Behaviour Help App, this process is streamlined and collaborative:

Data Collection: Stakeholders record details such as the Antecedent (what happened before), the Behaviour itself, and the Consequence (what followed). This is known as the A-B-C framework.

Collaborative Input: Parents, teachers, and caregivers can log consistent, real-time data for a unified understanding of the behaviour.

Analysis Tools: The app's dashboard identifies patterns, highlights trends, and generates detailed Functional Behavioural Assessment (FBA) reports, creating a strong foundation for behaviour planning.

Here's an example page from the behaviour help app showing behaviour data collection forms:

Manage: Safely De-escalating Behaviours

The Manage stage provides a clear framework for addressing behaviours when they occur:

Escalation Patterns: Teams identify the typical stages of a child’s behaviour escalation, from mild to extreme, and create tailored strategies for each stage.

De-escalation Strategies: The app helps outline specific, stage-appropriate actions to safely manage behaviours and minimise disruption.

Collaborative Plans: A downloadable behaviour management plan ensures all stakeholders use the same strategies consistently.

For autistic children, recognising and responding to escalation stages appropriately reduces distress and builds trust.

Here's an example page from the behaviour help app showing escalation stages:

Prevent: Proactive Strategies for Long-Term Success

The Prevent stage is about reducing triggers and teaching alternative behaviours:

Trigger Reduction: The app guides teams in identifying and modifying environmental factors and routines that may provoke behaviours.

Skill Building: It encourages teaching new skills or replacement behaviours that serve the same function as the behaviour of concern, such as requesting help or using calming techniques.

Monitoring and Adjustment: Teams can set SMART goals, track progress collaboratively, and make adjustments as needed.

By aligning stakeholders with consistent, preventative strategies, the child experiences a more predictable and supportive environment, which is critical for those with autism.

Here's an example from the app showing how the app enables the user to equip those supporting the individual with strategies on how to tailor environments, activities and promote positive interactions.

Linking with Healthcare Provider and Assessment Tools

For children with autism, healthcare professionals such as paediatricians, psychologists, and therapists play a pivotal role in diagnosing conditions, designing interventions, and monitoring progress.

The app acts as a bridge, ensuring that all stakeholders, including healthcare providers, have access to high-quality, consistent data to support decision-making.

Enhancing Communication with Healthcare Providers

The app’s detailed assessment tools provide healthcare professionals with actionable insights into the child’s behaviour, such as:

Comprehensive Data Records: By documenting incidents using the A-B-C framework (Antecedent, Behaviour, Consequence), the app helps paint a full picture of the behavioural patterns over time. This is invaluable when collaborating with healthcare providers to identify the root causes of behaviours or to evaluate the effectiveness of interventions.

Functional Behavioural Assessment Reports: The app automatically generates downloadable FBA reports, which can be shared directly with healthcare teams. These reports help professionals understand the triggers, functions, and contexts of the behaviours, aiding in more accurate diagnoses and tailored support plans.

Progress Monitoring: By tracking interventions, the app enables healthcare providers to assess whether strategies are working or require adjustment. This ensures that the child’s care remains dynamic and responsive to their evolving needs.

For more information on the Assess Manage Prevent framework visit the page:Behaviour Help Cycle: Assess, Manage, Prevent Behaviours of Concern

Why Is This Particularly Important for Children with Autism?

For autistic children, behaviours of concern often have complex underlying causes that require a multidisciplinary approach. Healthcare providers depend on reliable data to distinguish between behaviours arising from autism itself, comorbid conditions (such as ADHD or anxiety), or external triggers. Organizations like Autism Speaks play a crucial role in advocating for improved healthcare services and research on challenging behaviours in autism. The app’s collaborative framework ensures that:

Data Is Consistent: Everyone involved in the child’s care contributes to a centralised source of information, eliminating gaps or conflicting reports.

Decisions Are Evidence-Based: Healthcare professionals receive clear, actionable insights rather than anecdotal observations, enabling more precise interventions.

Collaboration Is Simplified: Instead of juggling fragmented communication across schools, homes, and clinics, the app provides a unified platform for sharing updates and reports.

Supporting Healthcare-Driven Interventions

Whether the goal is to develop an Individualised Education Plan (IEP), recommend therapeutic strategies, or adjust medication, the Behaviour Help App empowers healthcare providers with the information they need to make informed decisions.

Its user-friendly tools ensure that even those without specialist training can collect and share meaningful data that contributes to better outcomes for the child.

For more information on Autism spectrum disorder, read our article 'What is Autism spectrum disorder?'

Building Positive Outcomes Through Consistent and Collaborative Support

Managing problem behaviours in autistic children requires a nuanced and collaborative approach that respects the individual’s unique needs while addressing challenges that may arise.

Behaviours such as self-injury, aggression, or severe meltdowns often coexist with symptoms of autism, making it vital to distinguish between the two. This distinction is not just about understanding the behaviours but also about ensuring that interventions are tailored and effective.

Factors like sleep problems, which are common among children with autism, can often exacerbate problem behaviours. Poor sleep impacts emotional regulation, increases sensory sensitivity, and contributes to heightened stress for both the child and their family. Addressing these interconnected challenges requires a proactive, consistent strategy supported by reliable tools.

The Behaviour Help App is an invaluable resource for tackling these issues, guiding caregivers through the Assess-Manage-Prevent framework. By empowering families, teachers, and healthcare providers to record and analyse behaviours, implement effective de-escalation strategies, and develop preventative measures, the app ensures that everyone involved can contribute to the child’s progress in a unified way.

Ultimately, the goal is not just to manage problem behaviours but to create an environment where the child feels supported and understood. This collaborative, data-driven approach not only reduces stress on the child but also enhances the well-being of family members and caregivers, fostering positive relationships and long-term growth for all involved.

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